26. April 2020 / Zwischenbericht zur Stiftungsprofessur
Der Zwischenbericht zur Stiftungsprofessur ist ab sofort auf unserer Homepage zu finden. weiterlesen
03. April 2020 / Aktion zum Tag der Seltenen Erkankungen mit Wärme-Schäfchen "Lulu" verlängert!
Unsere Wärme-Schäfchen „Lulu“ Aktion lief fantastisch an und wurde leider abrupt durch Corona ausgebremst. weiterlesen
04. March 2020 / TODAY IS RARE DISEASE DAY FEBRUARY 29th 2020
Imagine your child is dying - and nobody cares!This is the fate of many children suffering from rare diseases. Today is Rare Disease Day and you can send a signal that there are people who care.From now until 31st March 2020, you can bring joy to a sick child.You can buy our cozy heatable sheep "Lulu" for 15 EUR and we will distribute it at Easter in different children's hospitals. You can also tell us your personal wish, we will write it on our "All the best"-card and then give both together as a present. weiterlesen
20. February 2020 / Rare Disease Day 2020
Campaign for the Rare Disease Day on February 29th weiterlesen
